Here’s why intermittent fasting may be the icing on my healing cupcake

It’s been a roller coaster ride of health, but intermittent fasting helped get my spunk back.

‣ MyFixitUpLife Theresa MyFixitUpLife Health Mast Cell Disease intermittent fasting
<em>Yeah I have the mast cell disease called mast cell activation syndrome and Ive finally found a way to live a full life in spite of it<em>

I’m lucky for what I’ve lived through with mast cell disease. It has taught me a great deal about living intentionally.

It has been an excruciating journey into the world of healthcare and alternative healing for more than 7 years. I’ve seen all of the specialists, have a long list of diagnosis, had surgery, have had deadly bacteria, taken up to 30 pills a day, been on liquids-only, have had too many ER visits, and been just exhausted and confused by the entire experience.

It’s challenging being sick.

And, it’s tough when the source of most of the health issues is a very rare disease. It’s so rare that it took months to get the extensive test results back. Even the hematologist who diagnosed me says that I present in a non-typical way, so I have a rare form of a rare disease. I have mast cell activation syndrome, and trust me, you don’t want this one. Mast cell diseases are autoimmune diseases that are full of surprise and mystery. Basically my mast cells (white blood cells that contain histamine and heparin) react dramatically and inappropriately to different stimulus, like food or smell. Little temper tantrums that I wasn’t able to control.

If you’ve ever watched ‘Crazy Sexy Cancer‘ documentary about Kris Carr’s cancer healing journey, then you can get a sense of the kind of health adventure I’ve been on, and way too much to share in this one blog post. I know way more about health, drugs, nutrition, medical tests, and treatments than I even knew could exist.

The other good part is that now I know what I need to do to keep my body from those temper tantrums, which include a few drugs and supplements, regular exercise, intermittent fasting, meditation, and a rigorous diet.

The diet part?

I’m allergic to gluten in a bad way that involves the ER, and most other foods make the worst temper tantrum that shows up as a 6-months-pregnant-looking belly and other unpleasant stuff within just a few hours. When I say ‘most other foods,’ I mean nuts, seeds, raw veggies, corn, alcohol, meat, soy, seafood, rice, sauces, and processed food. I’m sure I’m missing something off of that list, too.

‣ MyFixitUpLife Theresa myfixituplife hospital
<em>Being at the hospital stinks so I dont mind having a limited diet Just forces me to be a little extra creative at mealtime<em>

Restrictive eating has been frustrating, just because it’s tough to be an American and socialize with friends when you have severe food restrictions. My friends like to enjoy salad, veggie pizza, sushi, and wine. I’ve been on their food sidelines for years, feeling good about it, bringing my little lunchbox full of what I can enjoy like green veggie juice, homemade vegan mineral broth, powdered medical food or banana.

Socializing can be frustrating.

It’s just when my friends’ apologies come that it gets frustrating. Don’t feel bad that I can’t eat your food. I would much rather enjoy being with you and doing activities together then being terribly sick in a few hours, and bedridden for days afterward. My friends and family are way more important than food.

‣ MyFixitUpLife Theresa lunchbox White House MyFixitUpLife
<em>I bring my lunchbox everywhere I go I even brought my lunchbox to the White House when I had a meeting there in 2016<em>

Intermittent fasting has helped.

So back to the title of the blog post. I’ve tried intermittent fasting a few times, and I have always had more energy and less pain during those times, but something always got me off track. One of my functional doctors recently suggested trying intermittent fasting or a fasting mimicking diet to help with mast cell disease. I’ve watched fasting documentaries (favorites are Fasting and Eat, Fast & Live Longer), and I’ve read fasting research.

Studies show that it helps people get through chemo much more easily and it helps people reduce blood pressure and blood sugar. I don’t have those issues, but if it does good things for them, maybe it can help me, too. Listen, like I said before, I have been game to try anything. Life is full of so much possibility and opportunity, and I would rather repurpose furniture, make art or make beautiful homes than lay around sick watching Netflix.

It’s been a few weeks of fasting for 16 to 18 hours each day, and I can exercise way more and actually eat lettuce, rice noodles, and I had a gluten-free vegan veggie burger again. I know it doesn’t sound like much, but I had to give up those foods more than 5 years ago due to terrible reactions. The universe of food I could tolerate started in 2012 with gluten and diary, and ended up about 4 items long last spring. Now with tons of medical treatments, alternative therapies, and intermittent fasting, I’m back up to about 20 things and I am grateful for each and every one of those little food friends.

‣ MyFixitUpLife Lettuce avocado Myfixituplife Theresa
<em>Eating Bibb lettuce and avocado is a major treat for my belly<em>

Trying new foods is interesting.

Yes, I’m always nervous when trying a new food or medicine because of my impulsive mast cells, but I think giving my body those 16+ hours each day to heal and go into a state of autophagy, my cells have the bandwidth to deal with food. You can’t repair a highway during rush hour, and a body can’t rid itself of damaged cells when it’s busy processing food and reacting to food.

Gratitude is essential.

I’m also grateful for my family and friends who have been generous with understanding and kindness throughout my journey with mast cell disease. Without their help and support, I don’t think I’d have the opportunity to try so many different strategies for healing. It’s hard to be sick, but it’s also hard to love someone who is very sick. I’ve done both, and I’d definitely opt out of the opportunity for either.

The gratefulness I feel is too big to capture. My spunk is back and I’m ready for what’s next.

‣ MyFixitUpLife Theresa yoga MyFixitUpLife
Yoga and walking have been my exercise staples throughout my illness Now Im back to running and strength training again Im grateful
author avatar
Theresa
A handy designer and writer, she shares DIY projects, tool how-to, and home makeovers as a book author, home show speaker, DIY workshop coach, and radio host. Plus, she has a degree in journalism with a minor in architecture, and is a Certified Aging-in-Place Specialist (CAPs) and certified color consultant. She's created fast-paced makeovers for TV shows, and shares home trends and DIY tips as a freelance writer and guest on news shows and satellite media tours for TV and radio.

Comments (6)

Hello there!

I am currently researching about water fasting. I am currently down to chicken and spinach. I get to use salt and cook with olive oil. No fruits, no herbs and spices….nothing. My airborne food allergies are also increasing. My doctor says I can’t sustain life this way. I used to be able to eat some fruits like oranges, lemons, apples (no bananas) and grapes. Besides mcas, I have other autoimmune diseases but mcas is the biggest enemy. For years I only eat one meal a day so I do not know what more I can do to help my situation improve. I had a major mast cell flare July 2019 and have not come out from that flare yet.

Hi. I am so sorry for your frustrations and severe challenges.

Have you tried IV vitamins? When I was down to just a few foods, I started on IVs. They made me feel horribly worse for a while, like I got dragged behind a train, but eventually helped. Sticking with non-chew food (cucumber-celery juice, vegan broth, puree pumpkin) helps me when I’m having a flare. But, you only have a few foods left. Other things that have helped me: digestive enzymes, electrolyte tablets, epsom salt baths.

While I try to keep it as natural as possible, when I am having a reaction that just won’t calm down, steroids have helped. Budesonide has been the best medication that I’ve tried that’s actually helped my digestive mast cell disease.

Be careful with water fasting, too. If you are having trouble eating, you may already be malnourished, as I’ve been, and water fasting could lead to more issues. Have you seen this Fasting documentary? There is a woman with mast cell disease in it. https://www.youtube.com/watch?v=qKaxPnn_ijk

I hope some of this helps.

I am so blessed to have found your post as I begin my journey to take back control of my body. Fellow mast cell disease sufferer currently in a horrible flare. My body was rejecting all foods again following reaction to my cycle and I wanted to listen to what it was saying instead of perceiving my body as the enemy this time, so I started researching interminton fasting for health and their effect on mast cells. Just feels nice to not be alone and see that someone has trail blazed this journey with success. Thank you.

Nice one
I am suffering from random reactions to all sorts of food, a thing never had before, so I started intermittent fasting, for abou 16-18 hours without much reduction the sorts of foods and my iching gradually started to disappear
I did a tryptase and DAO test and they tested very will, but my itching hasnt fully gone away, so diagnosis is problematic
how long before your levels went back to normal?

Hi Bruno,
I am sorry to hear that you are suffering. It’s frustrating to have a health reaction that just won’t go away.

My normal isn’t normal. There are a lot of triggers to my mast cells, but I just stay careful about the ones I know about. I think of it like a bucket. If I can keep the histamine bucket fairly empty, then when a surprise happens, it doesn’t overflow. This means intermittent fasting, strict diet, exercise routine, and getting regular sleep, too. It took months to get the tests back for a mast cell disease diagnosis. I don’t think my levels are ever really normal. It’s more about adjusting to my version of normal.

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